The 20 Best Neurofibromatosis Doctors Near Me in St. Louis, MO

Find the Top Neurofibromatosis Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 60 doctor with experience in Neurofibromatosis near St. Louis, MO. Of these, 51 are Experienced, 5 are Advanced and 2 are Elite.

Location
LocationClose
60 providers found
    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    David Gutmann is a Neurologist in Saint Louis, Missouri. Dr. Gutmann is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma.

    Elite in Neurofibromatosis
    Elite in Neurofibromatosis

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Angela Hirbe is an Oncologist in Saint Louis, Missouri. Dr. Hirbe has been practicing medicine for over 17 years and is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.

    Advanced in Neurofibromatosis
    Neuroradiology
    Advanced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Matthew Parsons is a Neuroradiologist in Saint Louis, Missouri. Dr. Parsons is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Stroke, Meningioma, Subarachnoid Hemorrhage, Pediatric Low-Grade Glioma (pLGG), and Bone Marrow Aspiration.

    Learn about our expert tiers
    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Washington University

    660 S Euclid Ave, 
    Saint Louis,, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Frank Seghatol is a Cardiologist in Saint Louis,, Missouri. Dr. Seghatol is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Pulmonary Edema, Heart Failure, Aortic Regurgitation, Pediatric Myocarditis, and Cardiac Ablation.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Susan Bayliss is a Pediatrics provider in Saint Louis, Missouri. Dr. Bayliss is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Epidermal Nevus, Neurocutaneous Melanosis, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Experienced in Neurofibromatosis
    Pediatric Endocrinology
    Experienced in Neurofibromatosis
    Pediatric Endocrinology

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Abby Hollander is a Pediatric Endocrinologist in Saint Louis, Missouri. Dr. Hollander is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Congenital Adrenal Hyperplasia (CAH), Intersex, Growth Hormone Deficiency (GHD), and Swyer Syndrome.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Matthew Powell is a Pediatrics provider in Saint Louis, Missouri. Dr. Powell is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Autism Spectrum Disorder, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Asthma in Children, and Type 1 Diabetes (T1D).

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Michelle Miller is a Neuroradiologist in Saint Louis, Missouri. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Subarachnoid Hemorrhage, Neurofibromatosis Type 2 (NF2), and Stroke.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Ali Mian is a Neuroradiologist in Saint Louis, Missouri. Dr. Mian is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Choroid Plexus Cyst, Hydrocephalus, Pediatric Low-Grade Glioma (pLGG), and Clouston Syndrome.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Manu Goyal is a Neuroradiologist in Saint Louis, Missouri. Dr. Goyal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Congenital Cardiovascular Shunt, Multiple Sclerosis (MS), and Thrombectomy.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Katie Vo is a Neuroradiologist in Saint Louis, Missouri. Dr. Vo is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Stroke, Subarachnoid Hemorrhage, Cerebral Arteriovenous Malformation, Bone Marrow Aspiration, and Embolectomy.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Jack Jennings is a Radiologist in Saint Louis, Missouri. Dr. Jennings is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Fractured Spine, Caffey Disease, Scoliosis, Bone Marrow Aspiration, and Vertebroplasty.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Joshua Shimony is a Neuroradiologist in Saint Louis, Missouri. Dr. Shimony is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Hydrocephalus, Dextrocardia, Dextrocardia with Situs Inversus, Chiari Malformation, and Posterior Fossa Decompression.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Michelle Wegscheid is a Radiologist in Saint Louis, Missouri. Dr. Wegscheid is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Optic Glioma and Neurofibromatosis.

    Experienced in Neurofibromatosis
    Experienced in Neurofibromatosis

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Sammy Droubi is a Radiologist in Saint Louis, Missouri. Dr. Droubi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Febrile Neutropenia.

    Experienced in Neurofibromatosis
    Neuroradiology
    Experienced in Neurofibromatosis
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Martin Reis is a Neuroradiologist in Saint Louis, Missouri. Dr. Reis is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Stroke, Subarachnoid Hemorrhage, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome.

    Bradley Davitt
    Experienced in Neurofibromatosis
    Ophthalmology | Pediatrics
    Experienced in Neurofibromatosis
    Ophthalmology | Pediatrics

    SLUCare Physician Group

    1225 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Dr. Bradley Davitt provides comprehensive ophthalmologic care for pediatric patients. He specializes in childhood strabismus, amblyopia, and retinopathy of prematurity. He is interested in research that investigates glasses versus observation for moderate hyperopia in young children, and a registry for pediatric cataract surgery outcomes. Dr. Davitt is a professor of ophthalmology and associate professor of pediatrics in the Department of Ophthalmology at Saint Louis University School of Medicine. He is a member of the American Association for Pediatric Ophthalmology and Adult Strabismus, the American Board of Ophthalmology, and is a past president of the St. Louis Ophthalmology Society. Dr. Davitt is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Strabismus, Esotropia, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis.

    Ali Jamal
    Experienced in Neurofibromatosis
    Neurology | Pediatric Neurology
    Experienced in Neurofibromatosis
    Neurology | Pediatric Neurology

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Ali Jamal is a Neurologist and a Pediatric Neurologist in St. Louis, Missouri. Dr. Jamal is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Seizures, Heart Failure with Preserved Ejection Fraction (HFpEF), and Gastric Bypass.

    Dustin Baker
    Experienced in Neurofibromatosis
    Orthopedics | Pediatric Orthopedics
    Experienced in Neurofibromatosis
    Orthopedics | Pediatric Orthopedics

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Dr. Dustin Baker is an orthopedic surgeon who specializes in pediatric orthopedics and pediatric spine surgery for patients from birth to 21 years old. He offers surgical and non-surgical treatments for pediatric spinal disorders, deformities, and traumatic injuries, as well as general pediatric orthopedics such as fracture care, limb deformity, clubfoot, hip disorders, and neuromuscular conditions. Dr. Baker specializes in growth-friendly spine surgery, including MAGEC rods for early onset scoliosis. His additional interests include adolescent idiopathic scoliosis; neuromuscular scoliosis; kyphosis; spondylolysis; spondylolisthesis; pediatric fractures; flatfoot; Perthes disease; slipped capital femoral epiphysis; developmental dysplasia of the hip (DDH); limb length discrepancy; and cerebral palsy. Dr. Baker is an assistant professor with the Division of Pediatric Orthopaedics in the Department of Orthopaedic Surgery at Saint Louis University School of Medicine. He is a candidate member of the Pediatric Orthopaedic Society of North America and a member of the American Academy of Orthopaedic Surgeons. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. His top areas of expertise are Scoliosis, Neurofibromatosis, Spastic Diplegia Infantile Type, and Kyphosis.

    Lily Dolatshahi
    Hematology | Oncology | Pediatrics
    Hematology | Oncology | Pediatrics

    The Costas Center At SSM Health Cardinal Glennon Children's Hospital

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Dr. Leili Dolatshahi specializes in the care of pediatric patients with hemoglobin disorders, anemia, sickle cell anemia, and neutropenia. In her practice, she treats children who have been diagnosed with cancer, including cancers of the liver, lung, bone, adrenal gland, and cancerous blood disorders. She offers cancer pain management and provides the following services: bone marrow aspiration and biopsy; bone marrow harvest; cancer risk assessment and counseling; chemotherapy; palliative care; stem cell transplantation; and treatment for Wilms' tumor. Dr. Dolatshahi is an associate professor in the Department of Pediatrics, Division of Hematology and Oncology, at Saint Louis University School of Medicine. She is a member of the following organizations: American Academy of Pediatrics; American Society of Pediatric Hematology Oncology; Iranian Medical Council; and the Medical Council of Canada. Dr. Dolatshahi is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis. Her top areas of expertise are Sickle Cell Disease, Hereditary Pyropoikilocytosis, Hemolytic Anemia, and Congenital Hemolytic Anemia.

    Showing 1-20 of 60

    Last Updated: 04/28/2026

    When should I see a Neurofibromatosis doctor near St. Louis, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis doctor near St. Louis, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis doctors near St. Louis, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis doctors near St. Louis, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis doctor near St. Louis, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis doctor near St. Louis, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis doctors near St. Louis, MO?

    Look for the filter feature on the left side of the Neurofibromatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Neurofibromatosis Doctors by city